Our Vision
Our goal is to support families throughout the journey from diagnosis to treatment, improve quality of life, promote scientific research, and raise awareness in society.
Our Mission
To facilitate access to information, support, and scientific resources for individuals and families living with TBL1XR1 gene mutations throughout the journey from diagnosis to treatment; to contribute to scientific research; and to raise societal awareness.
Our Values & Principles
Core Values
- Ethical Responsibility
- Scientific Rigor and Transparency
- Solidarity
- Hope and Trust
- Participation and Collective Strength
Ethics and Transparency Principles
Herdem Çare bases all its work on ethical responsibility and public benefit.
- We protect the rights and privacy of families.
- All projects are planned through the guidance of a scientific advisory board.
- Donations, volunteer contributions, and collaborations are conducted in a transparent and traceable manner.
- We uphold the principle of regular reporting and public communication, taking responsibility for our actions and outcomes.
