Step 1: Clarify the Diagnosis

• Review the genetic report with a specialist.
• Understand what the diagnosis means for your child.

Step 2: Assemble Your Expert Team

• Consult a pediatric neurologist or child development specialist.
• Plan additional clinical evaluations as needed (MRI, EEG, etc.).

Step 3: Create an Early Intervention Plan

• Request multidisciplinary assessments in special education, physiotherapy, occupational therapy, and speech-language therapy.
• Determine therapies and educational programs suited to your child’s developmental needs.

Step 4: Seek Emotional and Social Support

• Obtain family counseling and psychological support.
• Join Herdem Çare support groups and connect with experienced families.

Step 5: Learn Your Rights and Apply for Benefits

• Initiate disability health board reports.
• Contact relevant institutions for educational support and other social rights.

Step 6: Connect with Herdem Çare

• Join our patient registration system for support.
• Participate in WhatsApp, Zoom, and face-to-face support groups.
• Follow updates on scientific developments, family stories, and events.

Following these steps helps families feel supported, build a strong foundation for their child, and reminds them that we are stronger together.