Events & Announcements

At HERDEM ÇARE, we not only provide individual support but also aim to create a broader and more effective impact by organizing events that bring together families, professionals, and the wider community. Under this section, you can access information about our scientific meetings, family gatherings, and important announcements throughout the year.

TBL1XR1 – 2026 Family & Scientific World Forum

Next year in Istanbul, this international gathering will bring together families of individuals diagnosed with TBL1XR1, experts in the field, researchers, and scientific stakeholders from various countries, including Harvard University. HERDEM ÇARE will host this significant event. The forum will feature scientific presentations, family sessions, expert-family meetings, and global advocacy strategies, all conducted together.

Forums, Workshops, and Gatherings

Throughout the year, we organize both online and in-person events offering diverse content, including family support initiatives, rights-based advocacy, psychosocial workshops for siblings, and case analyses for professionals.

Registration Forms

Application and registration forms for families, volunteers, and professionals wishing to attend the events will be available in this section. Once active, you can access the forms here.