{"id":301,"date":"2025-08-22T18:23:51","date_gmt":"2025-08-22T18:23:51","guid":{"rendered":"https:\/\/herdemcare.org.tr\/kurullar-ve-uyeler\/"},"modified":"2025-10-02T18:19:21","modified_gmt":"2025-10-02T18:19:21","slug":"kurullar-ve-uyeler","status":"publish","type":"page","link":"https:\/\/herdemcare.org.tr\/en\/kurullar-ve-uyeler\/","title":{"rendered":"Boards and Members"},"content":{"rendered":"\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Boards and Members<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Founding Board<\/strong><\/h4>

\"\"<\/span><\/p>

Herdem \u00c7are Association was established by volunteers from diverse professional backgrounds<\/strong> who share a strong sense of social responsibility and commitment to rare diseases.<\/span>
Each founder contributed their vision and efforts to lay the intellectual foundation of Herdem \u00c7are, enabling the first steps of this journey.<\/span>
The founders not only initiated the legal process but also collectively shaped the association\u2019s core values and vision.<\/span>
After the first general assembly, responsibilities were transferred to the newly elected management bodies.<\/span><\/p>

Board of Directors and Audit Committee<\/strong><\/span><\/h4>

The decision-making, execution, and oversight processes of Herdem \u00c7are are carried out by volunteer members with expertise in their fields<\/strong>.<\/span><\/p>

  • The Board of Directors<\/strong> is responsible for implementing the association\u2019s vision.<\/span><\/li>
  • The Audit Committee<\/strong> ensures that activities are conducted transparently and in compliance with regulations.<\/span><\/li><\/ul>

    Board of Directors \u2013 Regular Members<\/strong><\/span><\/h4>
    • Dr. Ay\u015feg\u00fcl Alt\u0131nba\u015f \u2013 Chairperson<\/span><\/li>
    • Berrin Zorlu \u2013 Vice Chairperson<\/span><\/li>
    • Yasemin Memi\u015fo\u011flu \u2013 Secretary General<\/span><\/li>
    • Sevgi Akdemir \u2013 Treasurer<\/span><\/li>
    • Prof. Dr. Tun\u00e7 F\u0131\u015fg\u0131n \u2013 Member<\/span><\/li><\/ul>

      Board of Directors \u2013 Alternate Members<\/strong><\/span><\/h4>
      • Nusret Alt\u0131nba\u015f, \u00d6mer Fener, \u00c7a\u011fla Boral, Melek Okur, Y\u0131ld\u0131z Hitit<\/span><\/li><\/ul>

        Audit Committee \u2013 Regular Members<\/strong><\/span><\/h4>
        • Prof. Dr. Sevtap Yoku\u015f Veznedaro\u011flu \u2013 Chairperson<\/span><\/li>
        • Nilg\u00fcn Demir \u2013 Reporter<\/span><\/li>
        • Dr. Tomru Derek\u00f6yl\u00fc \u2013 Member<\/span><\/li><\/ul>

          Audit Committee \u2013 Alternate Members<\/strong><\/span><\/h4>
          • Banu Eraslan, Ay\u015feg\u00fcl Tuncer, Melek Erhan<\/span><\/li><\/ul>

            Scientific Advisory Board<\/strong><\/span><\/h4>

            At the heart of Herdem \u00c7are, the Scientific Advisory Board<\/strong> consists of nationally and internationally recognized scientists with expertise in rare diseases.<\/span>
            This board guides research efforts, strengthens collaborations, and ensures that information is generated for the benefit of patients.<\/span><\/p>

            Board Members:<\/strong><\/span><\/h4>
            • Prof. Dr. Florian Eichler<\/strong> \u2013 Harvard Medical School, Professor of Neurology \/ Director, MGH Center for Rare Neurological Diseases<\/span>
              (Conducts clinical and molecular studies on TBL1XR1 gene mutations)<\/em><\/span><\/li>
            • Prof. Dr. Yasemin Alanay<\/strong> \u2013 Ac\u0131badem University, Professor of Pediatrics \/ Director, ACURARE Rare Disease Application and Research Center<\/span><\/li>
            • Prof. Dr. Tun\u00e7 F\u0131\u015fg\u0131n<\/strong> \u2013 Dean, Alt\u0131nba\u015f University Faculty of Medicine \/ Specialist in Pediatric Hematology and Oncology<\/span><\/li>
            • Dr. Amanda Nagy<\/strong> \u2013 Harvard Medical School \/ MGH, Pediatric Neurologist<\/span>
              (Works on clinical presentations associated with TBL1XR1)<\/em><\/span><\/li>
            • Dr. Stephen J. Haggarty<\/strong> \u2013 Harvard Medical School \/ MGH, Neuroscience Researcher<\/span>
              (Preclinical studies on genetic signaling pathways)<\/em><\/span><\/li>
            • Assoc. Prof. \u00d6zlem Akg\u00fcn Do\u011fan<\/strong> \u2013 Ac\u0131badem University, Department of Medical Genetics<\/span><\/li>
            • Assoc. Prof. S\u00fcleyman \u00c7ak\u0131ro\u011flu<\/strong> \u2013 Alt\u0131nba\u015f University, Child and Adolescent Psychiatry<\/span><\/li>
            • Dr. Ba\u015fak Adakl\u0131 Aksoy<\/strong> \u2013 Alt\u0131nba\u015f University \/ Medical Park, Pediatric Hematology and Oncology<\/span><\/li>
            • Dr. T\u00fcrkan Uygur \u015eahin<\/strong> \u2013 Medical Park, Pediatric Neurology \/ Alt\u0131nba\u015f University Lecturer<\/span><\/li>
            • Dr. Bilal Murat Memi\u015fo\u011flu<\/strong> \u2013 Istanbul University, Istanbul Faculty of Medicine, Internal Medicine<\/span><\/li><\/ul>

              Commissions<\/strong><\/span><\/h4>

              Herdem \u00c7are\u2019s activities are organized through commissions structured according to areas of expertise<\/strong>, each responsible for strategy development, implementation, and sustainability.<\/span><\/p>

              • Social Awareness & Communication Commission<\/strong><\/span>
                Chairs: Dr. Tomru Derek\u00f6yl\u00fc, \u00d6mer Fener<\/span><\/li>
              • Events & Resource Development Commission<\/strong><\/span>
                Chair: Ay\u015feg\u00fcl Tuncer<\/span><\/li>
              • Patient & Family Support Services Commission<\/strong><\/span>
                Chair: \u00c7a\u011fla Boral<\/span><\/li>
              • National & International Collaboration Commission<\/strong><\/span>
                Chair: Sevgi Akdemir<\/span><\/li>
              • Public Institutions & Legal Affairs Commission<\/strong><\/span>
                Chair: Prof. Dr. Sevtap Yoku\u015f Veznedaro\u011flu<\/span><\/li>
              • Scientific Research & Academic Collaboration Commission<\/strong><\/span>
                Chair: Prof. Dr. Tun\u00e7 F\u0131\u015fg\u0131n<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

                Boards and Members Founding Board Herdem \u00c7are Association was established by volunteers from diverse professional backgrounds who share a strong sense of social responsibility and commitment to rare diseases.Each founder…<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-301","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/pages\/301","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/comments?post=301"}],"version-history":[{"count":4,"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/pages\/301\/revisions"}],"predecessor-version":[{"id":317,"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/pages\/301\/revisions\/317"}],"wp:attachment":[{"href":"https:\/\/herdemcare.org.tr\/en\/wp-json\/wp\/v2\/media?parent=301"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}